Traveling with Shunt

Butterfly at Butterfly Atrium 

Entrance to  Gardens

The pain free medical device sort of vacation is over for now. Since the end of last week, the shunt and eye pain has returned.  Depending on how intense the pain is, I stay home. The week of June 12, I went with a friend to Hersey Gardens. The heat wasn't too bad that day. I did have a bit of a brain breakthrough on the way home. I was getting hungry during the evening ride. As the hunger progressed, so did my head and shunt pain. To make things even better, there was some pain from the distal catheter in my abdomen. I tend to get a little hangry when I need food.

Once I had eaten my shunt and head pain disappeared. So not only is my shunt affected by the weather, other magnetic fields....I can include hungry pains too. Butterflies make me happy, which was one of the motivating factors in going to Hersey Gardens was to see them.

Nick Fury wax sculpture

As the weather has been getting more humid and into 90 degrees, it's made the shunt go crazy again. Yesterday, the pain in my right eye returned as did more pain from the valve. Because it's been so humid outside, I get the same issues I was having when the barometric pressure drops in the winter.  Last summer, I don't remember things being so intense during the summer.  This week, I've had dizzy spells, shunt pain issues, nausea and of course, pain in my right eye.

With eye patch after injuries in 2014.

Earlier this week, I went with a friend to Madame Tussands Wax Museum. I can relate to the Marvel character, Nick Fury as he has a patch on one of his eyes. As a result of my brain injuries in 2014, my right eye had been moved which caused double vision. For about one year and thirteen days, I had my eye covered. In the beginning I wore a patch on my eye. Then upon seeing a neuro-ophthalmologist, he had insisted I just cover one lens of my glasses.

The love hate relationship with my shunt often drains me at times emotionally and physically.  There are times when I question my purpose especially when I'm in pain. I have developed healthy coping mechanisms to deal with the 'the shunt is driving me insane' moments.  I cry, scream, go exercise, then put head down, repeat.

Not working for medical reasons doesn't help and I'm often times I'm home....I tend to isolate myself sometimes when I'm not feeling well.  I do get out on some occasions for volunteering, support groups.

Misadventures with a cerebral shunt continues....