In the last week, I've two days that were pain free. Today, I realized I still have numbness around my mouth. I have csf pressure in my forehead, chiari malformation headache in the back of my head, some tmj issues in my right ear and of course, my personal favorite, balance issues when walking and standing. This makes me sad, most often when they happen often. Especially since I remember not having these issues before my brain injuries in 2014.
Saturday, April 10, 2021
Tuesday, March 9, 2021
After having a conversation with my neuro ophthalmologist last year during a check up with my right eye....He told me the pain I have occasionally behind my eye is not from my strabismus surgery in 2015, rather it's from the injuries I had in 2014. I would hope this is different in the afternoon. I was hungry around 3am this morning only to have chronic pain and hoped for like a second, that it would go away once I finished part of my apple. I've taken pain reliever this morning and yesterday....there's been little change. What makes me feel a little better...a sugar free chocolate chip cookie...
Monday, March 8, 2021
Friday, February 19, 2021
Friday, February 12, 2021
At least today I don't feel like removing my shunt from my brain with a kitchen knife. Right eye and shunt pain was reduced by 100% when I took the vitamin curamin this morning. Yesterday, it worked for the morning and then pain returned during mid day and continued into the evening. For now, I'm not waging a war against my shunt.
In my attempt to escape from both chronic pain and the pandemic we are all living in right now... I found two things that bring joy to my heart: music and fun commercials.
A great escape.
Tuesday, January 19, 2021
I haven't heard noises behind my right eye (strabismus surgery eye) for about a month. My shunt for the most part is behaving itself the last few days. A few weeks ago I felt a sharp pain run down the side of my neck along the distal catheter. I was worried the shunt might be getting obstructed again as I had a similar feeling in 2011 and the day after my shunt was obstructed and I was in the Emergency Room.
I do talk to my shunt sometimes, thinking I can convince it to behave especially when it's causing pain like I experienced a few weeks ago. Eventually, the pain went away and I was relieved that my fears of having surgery again did not become a reality.
While I am not in the operating room now, I do think about the children and adults who are having shunt revision surgery during this pandemic.
Friday, December 4, 2020
Pain behind my eyes and in my forehead all day today, I took something for it and nothing has improved. Sometimes the curamin vitamins I take work. Sometimes they don’t. Sometimes ibupropfen works, sometimes it doesn’t. Yesterday was better. My shunt beeped once while I was driving last week. Most likely it was adjusting or reprogramming itself. I did think for a second that it was communicating with a satellite since it is magnetic.
If only I could order take out food or pick up on radio stations with the advanced technology inside my brain.
Many people benefit from taking prescribed medications, I’m not one of them. In the past, I’ve used prescribed medication for pain management. Because of the side effects, I had to stop.mood swings. Other medications like gapapentin made my knees, fingers go numb.
Exercise is a good distraction from my pain issues as is making new art and seeing black santa décor at my local mall.
Seeing black santa fills my heart with joy, as does heavy metal holiday music.