Tuesday, February 11, 2014

Grrr...


Since July 2013 I've been feeling vibrations inside my head, pain down the right side of my neck where my catheter is, pain in my abdomen and stomach, feeling the catheter clog in my stomach, four seizures ( in October and November ) which I haven't had since I was 3 months old before the shunt was placed, numbness in parts of my head, pain on the shunt valve and pain/throbbing in random places in my head, over drainage and csf pressure buildup in the back of my head and forehead ( this happened last Friday and has happened multiple times since July. He did say it could mean the shunt is clogged in one area, but they're not sure.  He wants me to make an appointment to see him next week so we can discuss the matter again. Not sure yet if I want to do this.  I could see the benefits of hearing more of what he has to say. I'm also not in the mood to visiting their office.  It's obvious the shunt is over draining and I would need a new valve which is the only way to resolve some of these issues. The catheter in my stomach could also be dislodged and hasn't been replaced since 1993.  I think I need it replaced, but they're hesitant to do this for the reasons mentioned above. I've been given all sorts of pain medication which does nothing to relieve my symptoms. I have no way of relieving the pain I feel.  I'm going to try and get an appointment with another neurosurgeon to get their opinion. But how much longer? 

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