Saturday, May 16, 2020


Pain issues have been minimal the last week, which is a nice change for once. Recently, I had a video appointment with my neurologist and she suggested I try and put pain cream on parts of my head and  when I feel discomfort from my shunt or elevated csf pressure in my forehead. I'll try this and we'll see what happens.

Less pain, more dizziness for me this last week.  I experience this when move my head from side to side or when I am sitting, standing and everything else. Now that it's getting warmer and more humid outside my shunt ( which is magnetic) responds to the warmer temperatures. If I don't wear a hat outside when it's very hot and humid, it can cause different issues with my medical device like fainting and disorientation.

I can't volunteer because of the pandemic. Like everyone else, I'm home unless I make a trip for something essential like to the grocery store. My local Stop and Shop has a robot,  I think it's name is Bob or something... The robot has made me paranoid because of my shunt. I don't feel magnetic waves off of the robot like I do when I walk by a pest repeller on a wall.  I avoid the grocery store robot as much as possible. At one point, I thought it was following me in the produce section....

The pandemic has made me (along with millions of other people) anxious about going anywhere, outside. I can only wear a mask to cover my nose and mouth for short amount of time.

My local brain injury association has free webinars to help people cope with this pandemic.

Another great way to help all of us who need it now:

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