As the shunt and chronic pain madness continues, I've rediscovered scrap booking and music to help escape. This song M&M commercial song from 2016 makes me smile.
Monday, September 7, 2020
Wednesday, September 2, 2020
Recently, I went to my local aquarium and saw brain shaped coral which is totally appropriate for this blog and this month, as it's Hydrocephalus Awareness Month.
|Brain shaped coral at the aquarium|
Visiting the aquarium was a great escape from chronic pain issues. My right eye is still adjusting to my new eyeglasses. There are times when it has drifted to the right side if my head on it's own and images split in front of both my eyes as they did when I had double vison for a year and 12 days in 2014 and 2015.
The last three days I've had pain on the shunt valve, nausea and pain behind my right eye. It's around 1am where I am right now and I can't sleep. I am
|Myself out for a walk on |
a pain free day last month.
sitting by my sofa with my cat because of chronic pain issues. I've also been having sound sensitivity in my right ear. After my injuries in 2014, it caused several changes to my nervous system including TMJ and hearing issues in my right ear. Sometimes I am sensitive to sounds, like this morning, it's raining and the sound of the rain is bothering me.I move my head from side to side and there's pain. It's 1:55am.
Sunday, August 9, 2020
Last week, I got a new pair of glasses in purple. All week, my right eye ( surgery eye ) has been rebelling and drifting occasionally to the right. Or other times, it will not align with the other eye when I move my head. The glasses are a little bigger than my previous pair.
Chronic pain has been bad the last few days. Today has been a lot better and I saw a yellow butterfly this morning, which made me smile.
Sunday, July 19, 2020
Sunday, June 14, 2020
Wednesday, May 27, 2020
Tuesday, May 19, 2020
Saturday, May 16, 2020
Sunday, April 26, 2020
Friday, April 24, 2020
These stay at home orders during the pandemic remind me of when I came home from rehab after my brain injuries in April 2014. I couldn't drive for a year and 12 days because of the damage to my right eye. The only difference now is I no longer have double vision and can drive.
Sunday, April 5, 2020
The starlings outside my window are really loud and are a bit of a distraction from the throbbing in my head.
I've also rediscovered various movie soundtracks which have helped lighten my mood. You can never go wrong with Bill and Ted's Excellent Adventure or The Power Rangers Movie and Van Halen.
Friday, March 6, 2020
|After my brain injuries on 3/6/14.|
Overall, I had a great brain birthday today. I had no chronic or shunt pain issues. The whole day and into the evening.
During the day today, I tried a Virtual Reality simulation at my local mall. I was on a swing somewhere in Asia. Very cool experience there were times when I got a little dizzy going up high into the air.
|During the holidays in December 2019.|
|6 Years surviving multiple brain injuries.|
Blowing out my candle today made me hope to have more pain free days and of course, no more shunt revisions....I made a film about my brain injuries in 2014.
Friday, February 14, 2020
I've read in the news that soldiers in Iran suffered traumatic brain injuries as a result of an Iran Strike recently. The article can be reach here: 109 troops suffered brain injuries
I just hope these troops are getting the appropriate services they need to assist them in their recovery.
Symptoms of brain injury often never really ever go away completely.... A fellow survivor told me once, that recovery is a marathon and not a sprint.
In the meantime, I've re discovered word search puzzles, which I use to pass time when I'm not out saving the world through volunteering or drawing.
Sunday, January 26, 2020
Either way, it's made me grumpy and I've been staying indoors when I don't have anywhere I need to be. Pain reliever's haven't been working.
I don't think the settings are have changed. Although, I wouldn't have anyway to check this because...
1. My neurologist doesn't know how to check my shunt's settings
2. The last neurosurgeon I saw in 2018, didn't know how to do this either. Because...
Apparently the shunt I was given isn't used anywhere nearby.
And this is just so helpful...
I can't go back to my ex neurosurgeon (who placed this shunt) because I fired him and he got animated into one of my films...
All I can do is wait for this to go away.
And there's always a little time for a tea...
Sunday, January 5, 2020
Thursday, January 2, 2020
|X Ray image of my shunt 2014 to present.|
No elevated csf pressure in my forehead.
No pain from the shunt valve and/or distal catheter in my abdomen and neck.
No nausea associated with the shunt adjusting itself.
No right eye pain (strabismus surgery eye)
No dizziness when moving my head or sensitive scalp.
I also haven't heard my shunt beep since 2016.
So for now, I don't feel my shunt at all. Something I haven't experienced in a while. I took this for granted prior to my shunt being moved in 2009.
Before then, I only knew the shunt was in my brain when it stopped working....
In the 2000s I had one revision in 2009.
In the 2010s I had shunt revision surgery in 2011 and two in 2014.
Having chronic pain makes me grumpy/irritable/depressed and there have been times when I wished I could remove my shunt myself. Obviously, this can't be done...My nervous system cannot survive without one...
It's a great feeling to not be in pain and not want to wage war against my medical device.
Here's hoping for less pain and no shunt revisions in the next decade.