Friday, February 7, 2014

August and then some...


I suspect I'll have a shunt revision sometime next week. After playing phone tag with the doctor's office ( my surgeon spent the last two weeks working at the hospital ) I may actually get some answers on the day of my revision.  Of course, as always the shunt decided to give me the worst day ever today.  Even while I was sitting in the movie theater this evening watching The Lego Movie, the interior of my skull felt like it was going to burst open. This week I recorded the following shunt activities: 



2/3/14 – Sharp pain on shunt valve at 3:20am (multiple times), 6:30am (multiple times), 7:57am-8am, 8:34am (multiple times) with pain in stomach/abdomen simultaneously.  Pain on shunt valve (multiple times) at 8:53am, overdrainage at 9:12am in forehead/back of head. Pain on top right corner of head at 10:16am, pain on left distal catheter at 10:22am (multiple times) with pain on shunt valve at 10:24am, 5:58pm. Pain behind right ear with pain on top right corner of head at 10:50am, pain on top right corner of head at 12:16pm, 12:48pm.  Vibrations in back of head all afternoon. Sleeping too much.   Vibrations in back of head at 6:05pm. 6:11pm, 6:25pm, 6:27pm with pain behind right ear. Pain on shunt valve at 6:34pm with nausea, pain in stomach. Nausea in stomach/pain at 6:57pm.

2/4/14 – Pain down right side of neck at 5:15am with pain on shunt valve and throbbing/pain in abdomen/stomach area.  Sharp pain on shunt valve with pain in stomach at 5:41am, pain in abdomen at 7:15am, 8:30am (with pain on side of neck/shunt valve at 8:40am.  Pain on shunt valve at 10:48am, 1:16pm (with pain down right side of neck). Pressure buildup in forehead with pain in abdomen near ’93 revision scar at 1:35pm.  Pain on shunt valve at 2:21pm with pain in abdomen. Abdominal pains continued into evening hours every hour multiple times 3pm. 

2/5/14 – Sharp pain on shunt valve multiple times with pain in stomach and right side of neck at 1:26am (with pain on left distal catheter multiple times) 4:11am, 8:04am. Pain on left distal catheter at 8:16am.   Sharp pain on shunt valve at 9:15am, 9:30am (with pain on left distal catheter) pain on shunt valve at 11:34am (with pain down right side of head).  Pain in stomach at 11:47am, pain on shunt valve at 11:54am, 12:05pm, 12:13pm. Vibrations inside head multiple times at 12:52pm. Pain down right side of neck on catheter at 3:39pm.  Pain in stomach at 3:41pm. Pain on shunt valve at 3:59pm. Pain top right back corner of head at 4:27pm. Sharp pain near ’93 revision scar at 6:55pm. Pain on shunt valve at 7:14pm.

2/6/14 – Pain on shunt valve with pain in abdomen near ’93 revision scar at 5:47am. Pain on shunt valve at 4am. Had gated walk around 4:11am. Cramping and pain in stomach/abdomen at 7:44am, 12:27pm. Pain in abdomen with pain on shunt valve at 11:19am, 11:25am. Cramping/pain in abdomen near ’93 revision scar at 1:41pm. Pain in stomach 3:14pm.  Pain on shunt valve at 5:56pm,  6:09pm, 6:14pm, 6:16pm (multiple times)

2/7/14 – Pain on shunt valve at 3:25am, 5:17am, 6am with pain in stomach and abdomen. Pain/vibrations in spinal cord during early morning hours while in bed around 5am.  Pain down right side of neck at 5:30am. Pain on left distal catheter at 7:40pm, pain on shunt valve at 8:47am. Pain in stomach, abdomen around 10:06am. Vibrations inside head multiple times at 10:15am-10:16am. Pressure buildup in forehead at 10:36am with pain in back of head and stomach.  Pain on shunt valve at 10:43am. Pain in lower abdomen at 10:47am. Pain on shunt valve and right corner of head 11:15am, 11:26am (with pressure in forehead) pain in back of head and pain on shunt valve again at 12:34pm, 12:36pm (multiple), 12:52pm.   Pain down right side of neck on catheter behind ear at 12:53pm. Pressure in forehead at 1:06pm. Pain on shunt valve at 1:09pm, 1:13pm, 1:48pm (with pressure in forehead) Pain behind right eye at 1:57pm. Pain in back of head and on left distal catheter at 3:01pm. Pain on shunt valve at 3:13pm. Pain on shunt valve multiple times between 5pm – 6:15pm, 7:26pm, 7:28pm with pain on top right corner of head and pressure down back of neck.  Pain in top right corner of head at 7:34pm. 

The shunt didn't interrupt my ability to enjoy the movie and I don't allow it to interfere with my work during the daytime.  I don't know what happened today, but it was the worst pain I've felt in week...which is why I'm going to bed tonight before 8pm. 

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