1/15/14 – Sharp pain on shunt valve at 6:06am, 7:46am, 7:56am, 9:01am (multiple times) 9:13am, 9:23am, 9:54am, 10:04am-10:06am (Multiple times), 10:32am, 10:55am (multiple times) 12:47pm, 1:08pm, 1:24pm, 1:30pm, 2:37pm, 2:47pm, 2:52pm, 2:57pm (multiple times) 3:08pm-3:11pm, 3:19pm, 3:34pm-3:39pm (multiple times) 3:42pm, 3:48pm, 3:52pm, 3:54pm (multiple times), 4:15pm, 5:02pm and into evening hours until going to bed at 8pm.. pressure in forehead, sides of head. Fluid pressure buildup in forehead 1:38pm, pain down right side of neck on catheter at 2:11pm. Total of shunt pain interruptions: 40
1/16/14 – Sharp pain on shunt valve at 2:19am, 9:11am, 9:32am, 9:41am-9:42am, 10:05am, 10:16am, 10:20am, 10:22am, 10:31am, 10:56am, 11:13am, 11:22pm, 11:32am, 12:57pm, 1:12pm, 1:35pm, 2:49pm, 3:01pm, 4:37pm-4:38pm, 7:05pm. Pain down right side of neck on catheter at 7:46am, 2:38pm, 3:47pm, 4:17pm. Pain on top left corner of head on distal catheter at 9:34am. Intra-cranial pressure in forehead at 10:34am-2pm. Still having appetite issues. Wasn’t hungry for breakfast, didn’t have appetite until 11am. Pain in back of head at 2:11pm. Vibrations in back of head at 2:56pm. Pain in stomach near ’93 revision scar at 3:01pm.
Today so far: 1/17/14 – Sharp pain on shunt valve at 1:54am, 2:11am, 2:30am, 8:22am, 10:28am, 10:31am-10:32am (multiple times). 11:57am, 12:05pm, 12:30pm ( multiple times), 1:16pm, 1:26pm....
Am I looking forward to having my 8th shunt revision in the next few weeks? No, but it means the shunt won't be causing me pain any more. Have I enjoyed enduring the previous 7 surgeries. No, but again it meant the pain was going to go away and the shunt would be working again. The other revisions were done because it was an emergency and had I not had them at those times, I would've died. I appreciate my surgeon wants to do an intervention before it becomes an emergency. The shunt not working also takes an emotional/psychological toll on an individual as well. I don't want people to feel sorry for me because I know things could be worse and I'm fortunate to be able to do the work I do when there are others with the same condition who have more severe challenges than I. The whole purpose of this blog is spread awareness about the condition and give an inside look into what it's like to live with this.
Hydrocephalus is unpredictable. I was really hoping with the last revision in 2011, I wouldn't have another revision for like 20 years. Why? Because I didn't have any shunt issues from my 1993 - 2009. However, with time, the body changes which could explain why I could be having more frequent issues in the last few years. I look forward to the day when we have technology as advanced as in Star Trek when all you need is a laser scanner which gives you an instant diagnosis of what's going on the shunt system including expiration dates. :)